This is an absolutely amazing story from a man who became increasingly debilitated over the course of years, following infection with a viral illness.
Jeff went to hell and back, getting progressively more ill over the years. He had Myalgic Encephalomyelitis (ME), POTS, MCAS, dysautonomia, as well as a host of other symptoms.
Jeff tells his story on his site, MEchanical Basis.
Eventually he discovered that the original virus had damaged the connective tissue in his neck, causing compression of his brain stem through a condition known as Craniocervical instability with atlantoaxial instability (CCI/AAI).
Ultimately, Jeff is the one who had to do the research and go to battle for himself (I’ll let you read his story in his own words). It is pretty incredible, and heartbreaking what he had to go through just to be taken seriously.
What I’m also taking away from Jeff’s story is that, once he had the surgery to correct this condition and his autonomic nervous system was able to function normally again (in terms of regulating his heart rate, blood pressure, etc)., his mast cell activation syndrome WENT AWAY!
This is incredibly inspiring for me to hear, as I suspect that it was an insult to my own nervous system (in the form of a severe emotional trauma) that started me on this path, and I sometimes wonder if healing from the trauma could make it go away.
It’s certainly not a direct parallel to Jeff’s story, but what I do take away from his story is that, yes, there is absolutely a link between the nervous system and the immune system, and that if something’s wrong with the nervous system, it can throw the immune system off as well. (And, that by treating the nervous system injury, you can also bring the immune system back into alignment).
Here is one article that Jeff shared on his Twitter feed: it’s a scientific article entitled:
This is SUCH an inspiring story, for so many reasons. Thank so much, Jeff, for sharing!